Thursday 29 November 2012

Travel vs Apathy: Bucket seats and prawns


One common symptom of PD is apathy. It is now understood to be a symptom of PD rather than a psychological consequence of the disease. And more common with left side onset of PD motor dysfunction. It is different from depression, another common symptom.

"Apathy refers to a constellation of behavioural, emotional, and motivational features including a reduced interest and participation in normal purposeful behaviour, lack of initiative with problems in initiation or sustaining an activity to completion, lack of concern or indifference, and a flattening of affect." - Apathy in Parkinson’s Disease Journal of Neurology, Neurosurgery and Psychiatry - http://jnnp.bmj.com/content/73/6/636.long

”Apathy is a neurologically based decrease in motivated behavior. It is organic rather than situational in nature. The causes are complex and not well understood but suffice to say it appears to be part of the same change in dopamine activity that brings on PD.” - http://theparkinsonscoach.com/2012/01/24/parkinsons-apathy-dont-care-or-cant-care/


For me, one highly effective anti-dote to apathy is our semi-annual migration: Vancouver - Saint Louis, Senegal. The disruption of routine, the planning, the organizing, and the necessity of constant decision making preclude apathy.

True I could just give up and not do it. However, by nature I am more compulsive/determined than apathetic. And besides, having set things up this way financially, I don't really have a choice!

So off we go.

After the usual struggles;
- Abdoukhadre wrangling our excessive carry-on baggage through security while wearing a belt and shoes he has to remove,
-  me wrenching Taxi out of her cat cage at security (the security agent kindly offering me a seat while waiting for her cage to go through the x-ray. I told him Taxi is afraid of the security process. He said: "are you nervous?" I was in full body tremor. "No, she is. I have Parkinson’s."),
- surrendering control and responsibility for getting to the plane on time to the Air France agent pushing the wheel chair (his fat belly flapping between my shoulder blades),
- once in the plane, finding somewhere to do yoga stretches. (Inexplicably our regular fare tickets put us in Premium Voyageur Class where the scaled down Business Class bucket seats could not save my toes from cramping into the prawn pose),

and after recovering from the 24 hour marathon of symptom-inducing conditions, we arrived, in Saint Louis, safe and sound.

to Saint Louis du Sénégal